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I didn't know adults could get whooping cough. They can - and how!

6/10/2016

34 Comments

 
​A couple of days after getting back from holiday in Spain in August I started to get a bit of a dry, tickly cough. I thought no more of it and in fact played cricket the following weekend and the weekend after that too. During that time I was aware that the cough was there, but it hadn't really developed into anything worth worrying about so I just put it down as being an annoying summer cough/cold.
 
Little did I know that that particular theory would soon change - quite dramatically!
 
Saturday 27th August was my son’s birthday and I woke up coughing a bit more than I had been previously. Not enough to bother me much during the course of the day, but when I went to sleep that night, the real trouble started. I woke up several times during the night having coughing fits that seemed to be getting worse and worse. The last one in the early hours of Sunday morning was so scary that I said to my wife that we should go to the hospital to get it checked out. So about 8am Sunday morning off we went to the local emergency unit where a doctor diagnosed a chest infection and prescribed antibiotics and steroids.
 
The following morning I got an emergency appointment with my GP and she referred me for a chest x-ray which I had the same day. I was told the results could take up to a week but in fact they were back in the surgery the following morning and revealed I had a partially deflated lung. That was the least of my worries as in the meantime I had experienced more and more coughing fits to the point that I was now scared to go to bed. Really bad episodes of choking and gasping for breath that lasted anywhere between under a minute to more than two. As a result I tried staying up watching TV as long as I could. Being tired seemed a better option than choking to near death.
 
I got through Tuesday night somehow but the coughing continued off and on through Wednesday. Bizarrely I felt absolutely fine when I wasn’t gasping for breath, but when the coughing attacks kicked in I became a bit panicky to say the least as I had no idea what was causing such awful episodes. My wife was also beside herself with worry, fatigue and the fear that I was going to pop off in front of her eyes – that’s how bad some of the attacks were.
 
Wednesday night I again tried to stay up and watch tv, not just to give my wife some respite but also hopefully to avoid more attacks. Around 4am though I could barely keep my eyes open so decided to try and sleep on the sofa. 20 minutes later I woke up feeling like I was drowning/suffocating and desperately trying to draw breath. Thankfully my wife heard my gasps and wheezes from upstairs and ran down to try and help me. Eventually, I managed to get my breath but was left feeling exhausted. It was then that we decided to call an ambulance as we were getting more and more bewildered by this ‘chest infection’ that was causing such scary and more frequent coughing episodes. Basically, whenever I coughed, my throat shut tight and was very reluctant to open up again. I later learned this is what's called a laryngospasm.
 
The ambulance team ran a few tests – all of which seemed fairly normal i.e. blood pressure, oxygen levels, pulse – before taking me down to the local hospital where I had a blood sample taken and a doctor do various tests again to try and ascertain what was wrong. The upshot was they gave me stronger antibiotics and acknowledged that the results of my blood test revealed that I did indeed have an infection. I was then sent home.
 
I managed to endure Thursday with similar episodes - there seemed no point in going back to hospital again as it appeared there was nothing they could do. After all, other than the irregular cough that had me gasping for breath, all my other signs were good. However, another particularly horrendous episode on the Friday night saw me back in hospital again early Saturday morning. The one consolation being that my belief that Friday nights were really busy one for A&E Units was knocked for six when, at five in the morning, I was the only person in there apart from the bloke on reception. We had a lovely chat when I wasn’t coughing.
 
This time I saw a doctor who, whilst pleasant enough, didn't really know what to do for the best. He could see I was struggling when the cough kicked in but the best he could suggest was that maybe it was GERD related i.e. food reflux. I knew it wasn’t, but he prescribed me some tablets for it anyway (which I still have). He also, at my suggestion (as I had read they can suppress coughs) chucked in some codeine phosphate pills, but being anti-drugs and not wanting to be out of it when trying to cope with future attacks I chose not to take them once I had read about the possible side effects. Again, I was discharged, this time around 6am. My wife said she couldn't believe it when she heard me coming up the garden path coughing at around 6.45am! She was convinced they had to keep me in for observation, so bad was the latest attack.
 
Throughout this time I had been exchanging messages with a GP friend of mine, just letting him know what was going on. After I told him of this latest visit to the hospital, he asked if they had tested me for Pertussis and was amazed when I said they hadn’t. To be fair, I didn't even know what Pertussis was, then, but I do now, only too well! It’s whooping cough, and as soon as I read about the symptoms and timeframes involved I knew straight away that that is what I had. In fact it was glaringly obvious. The dry tickly cough to start, the feeling perfectly fine in between coughing fits, with no other bodily indicators to suggest I was unwell. The dreadful, irregular attacks that had me thinking I was gasping my last breath, the fear of going to bed at night – it all added up. And yet, not once during my trips to hospital or surgery had any doctor even thought to consider or mention that whooping cough was a possibility.
 
Armed with this new information I took it upon myself to go back to the hospital again on the Saturday afternoon and see a doctor to explain that that is what I thought it was and to ask for a per nasal swab test. A very kind, compassionate and thorough doctor listened to my story, which included me having a bit of a coughing fit and breaking down in tears with frustration and fatigue, before contacting the microbiology consultant who explained to her how to do the test. Cue two long wire brush type looking implements being shoved up each nostril and scrubbing the back of my throat – not an experience I recommend – and being sent away for tests. At last I would get to the bottom of this mystery illness and the results would confirm that it was whooping cough all along, wouldn’t they?
 
To keep my GP in the loop I made an appointment on the following Monday, where I explained what had been going on. I then kept my fingers crossed that the results would be back sooner rather than later. But no! Instead, I got a phone call from a doctor in the emergency unit at the hospital on the Wednesday saying she had had a note from microbiology that stated that the samples I had given were the wrong kind! What? They shoved two brushes up my nose and scrubbed the back of my throat – I remember it well! How could they be the wrong samples? Anyway, that was the situation. As luck would have it though, this latest doctor had herself had whooping cough last year so she was able to empathise with me, but ended by saying that hers lasted exactly 100 days. I was only on about day 30 at this stage, so it wasn’t really what I wanted to hear. Oh well. She suggested I have a Pertussis antibodies blood test, which would definitely reveal whether I had whooping cough or not, so I got back in touch with my GP and asked for them to leave a form out. Then it was back to the hospital yet again for a two-hour wait to have my blood taken – on one of the hottest days of the year - followed by more coughing/choking fits. Here's an example of a MILD attack (warning: it is pretty grim listening). The worst ones went on for around 3-5 times as long, if you can imagine that.
Click here to hear what a mild attack sounds like
After around two weeks of enduring these scary attacks, they started to calm down a bit (or maybe I was just so used to them they were less scary). If I did have whooping cough, I seemed to be approaching stage three, which consists of a very bad cough that can last for weeks or months, depending on what it fancies. My concern remained though that even though I had seen several doctors, not one of them had suggested that whooping cough could be the cause. It just didn't seem to be on their radar. I also noted in my frantic online search to try and shed some light on the mystery that in certain parts of the country whooping cough is currently on the rise – and that somehow didn't surprise me, given the medical profession or those I'd seen in it, seemed unable to diagnose it despite what are to me in hindsight, knowing what I do now about my own experience, very clear symptoms. Whooping cough is a notifiable disease too. That means if a doctor discovers a case, they are duty bound to inform the local health community as one case can soon lead to a local epidemic, so why isn't it easier to diagnose?
 
Thankfully, because I work from home, I mix with far fewer people than many, but the doctors aren't to know that. I feel like I have been on a sole crusade to try and establish what is wrong with me and have had to take the lead at every stage. Asking for an x-ray, asking for a swab test, even having to ask for the forms for a blood test. I even managed to get myself a CT scan appointment, though I declined it when they revealed it had been booked for a thorax/abdomen investigation rather than a throat one, which is where all the trouble lies. That and the fact they wanted to inject me with dye!
 
The last twist to this story is that today I opened a letter and had to laugh (even though laughing makes me cough). It was from Public Health England informing me that they had been notified that I had whooping cough. Finally, after nearly six weeks of suffering. After enduring many scary nights when, in the absence of understanding the cause I sometimes felt like I was going to choke to death. After all that, I now know I have had whooping cough all along. And, they beat my GP's surgery to it. When I contacted them yesterday for the results I was told, “yes they are back. A doctor will have a look at them in the next day or two”. I appreciate they have many other important things to do, but come on. I’ve been trying to get a diagnosis for ages! 
 
In conclusion the NHS does a great job. I can’t fault the speed and efficiency of the ambulance crews, the way I was able to get an emergency appointment at my local surgery or the efficiency of the staff at the hospital (other than the fact that no one at any stage thought to even consider whooping cough as the cause of my woes). It may not have made a huge difference as there is no treatment for it, you just have to endure it for as long as it takes (up to 100 days). But, it may have given me a bit more peace of mind on those nights when I was scared to go to bed and genuinely feared I might be breathing my last. Here's how serious it was at its peak - I asked my wife to video it one night so that the doctors could see just how bad it was. She said she wasn’t going to do that as she didn't want to film me dying. Trust me, adults DO get whooping cough - and, it's easily the worst illness I have ever had in my life. Make sure you and your family have been vaccinated.
34 Comments
Tricia Murray
12/10/2016 12:18:40 pm

If this blog helps just one person get diagnosed earlier, it will be worth it. Easily the most difficult 2 months of our lives - genuinely worried that my husband was going to choke to death in front of me and feeling helpless. As he says, we cannot fault the NHS service but think that GPs should have a Pertussis check list they can refer to if a patient presents with these symptoms.

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Polly Jordan
31/10/2016 08:11:40 pm

Thank you so much for explaining your experience so candidly. I fear I may too have whooping cough and am having a blood test tomorrow. I went to my GP today after returning from Mallorca (funnily enough) on Saturday, I spent the entire week coughing and gasping periodically, especially at night, and have ulcers under my tongue. The pain when coughing so violently is extreme to say the least, my ribs and stomach ache from all the coughing fits.

I will know in a few days if it is Whooping Cough, but after reading your horrendous experience I am grateful to my GP for potentially diagnosing Whooping Cough in a 10 minute appointment.

I hope it is all behind you now and I believe you are now immune... Whoop whoop! Excuse the pun.

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Al Murray link
31/10/2016 10:43:40 pm

If my blog helps just one person that's great. Thanks for taking the time to comment.

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Nicola Booth
2/12/2016 07:37:08 pm

Thankyou for such an accurate description of what I now know is WC. 3 doctors packed me off one telling me I had a virus , I KNEW it wasn't , I saw a utube video of WC and knew that's what I had . I suspect everyone I've told thinks I'm exaggerating my symptoms - your synopsis is identical to mine . Apparently I wasn't vaccinated in the 60's. I'm only in week 4 , can hardly bare the thought of 100 days !!

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Al Murray link
2/12/2016 08:18:46 pm

Sorry to hear you've caught it. It is certainly the worst thing I have ever had and the only solace I can give you is that after the worst stage it does become much more bearable, though incredibly frustrating. I am on day 114 tomorrow and still have a cough, which is exacerbated by cold air or even laughing.

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Nicola
2/12/2016 08:41:21 pm

My voice disappeared on day 1 and 24 days later has made no sign of returning so that makes it increasingly frustrating . Imma primary school teacher so currently on sick - at what point did you return to work ? I'm so exhausted from this cough I can't imagine having the energy ! Any tips on sleeping ? I'm upright on 5 pillows but that's giving me a bad back !
Yes the worst illness I've ever had .

Al Murray
2/12/2016 11:40:08 pm

I work for myself so it was just a case of working when I felt able to in the early days of the illness. In terms of sleeping I 'd love to tell you that there is a magic formula but sadly there isn't. I found that no amount of sitting upright or using extra pillows made a difference but unfortunately not. I'd just sleep with the normal amount of pillows as unlike normal coughs, it has no positive effect. It is, I found, the most untreatable illness of all.

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Nicola
3/12/2016 10:04:35 am

Something very bizarre is , it appears all 3 of us had just returned from Spain ? I started very mild coughing the following day after my flight too?

Thanks Alasdair In my case , a single parent , nighttimes are even more terrifying as there is nobody there to reassure you or check you don't black out from the coughing . This has happened twice , only for seconds but horrendous . One night this week I had to actually wake one of my children to help me breathe and I'm keeping them awake every night . I just can't believe there is so little out there to help us , even finding somebody who believes how bad this is is very comforting. My doctor has apologised for them missing my very clear symptoms ( I've not been able to talk since contracting this so it was all written down) but she says no doctor in our practise has seen WC cough , neither has the man at Infectious Diseases at Newcastle upon Tyne RVI! Hopeless isn't it .

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Al Murray
3/12/2016 12:15:31 pm

Wow! Seems there might be something to this if all three of us have been to somewhere in Spain. Which airline dod you fly? Sorry to hear you are going through the hellish part of it. It really is awful, particularly, as you describe, the attacks where you really need someone around. All I can tell you is to try and keep as calm as you can knowing it will pass and try straw breathing, which is pursing your lips like you were sucking through a straw (look it up on the web maybe). Other than that I'm afraid there really is no treatment, but if you can endure this hideous phase, it does get bearable after that. I understand you completely when you say finding someone who knows how bad it is is comforting. That doctor who phoned me and said they had had it too was music to my very distressed ears at the time, not least as I still hadn't been diagnosed but it reaffirmed my belief that at least I knew what I was dealing with, despite other doctors failing to know.

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Nicola
3/12/2016 02:03:46 pm

I flew on Vueling from Malaga to Manchester 28 October and started that very insignificant dry cough a day or two later , my voice totally disappeared the following week . Such a weird coincidence? I do yoga so am trying to use my yoga breathing , through the nose but I have to admit in the blind panic any kind of breathing is a relief. My letter from Public Health cane today confirming my diagnosis and the fact I'm too late for treatment . It's so frustrating - Had my doctors believed how bad my symptoms were perhaps I could have had kept away from people during that highly contagious stage and received treatment !

WC will undoubtedly be on the increase as the wave of babies who didn't get vaccinated late 90's get into Uni . Something needs to be done ,I'd not wish this on anybody .

Al Murray
3/12/2016 06:19:16 pm

To be honest, 'treatment' is just a course of antibiotics, and it had no effect whatsoever. Nothing I took made any difference really. Just had to endure the very worst of it and then put up with the annoying cough.

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Jess
4/12/2018 08:44:55 am

Thanks for this - it’s been useful. I too believe I have it. All symptoms, all timeframes etc all stack up. Went to the GP last week and told her I think I have it, she packed me off with antibiotics and no mention of testing for the bacteria.
Have to say, I’m rather surprised. I live in one of the most deprived boroughs in London, but she was simply not bothered by the fact that I clearly had a notifiable disease. Negligent? Probably. I’m sure it’s more paperwork for them, but sure, let me go and infect everyone because I don’t have a diagnosis.

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Al
4/12/2018 09:17:57 am

Hi Jess. Thanks for the message. It was incredibly frustrating - and worrying - for me, It took weeks to get diagnosed, and in the end I pretty much diagnosed it myself after a doctor friend asked if i had been tested for it. If you have had the stage where you wake at night literally thinking you are going to die choking and struggle to get your breath then that is definitely whooping cough. I would almost insist that they give you blood tests. Tell them about this page if you like. Say you read it and all the symptoms rang true. I saw several doctors and none of them thought of whooping cough. It is so rare it is not on their radar. But, it still exists as my experience proves.

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Susan
1/7/2019 10:56:56 pm

My 3 boys have been coughing violently for weeks. The scariest part - the oldest has developed laryngospasms! Awful! One of my twins was finally diagnosed - yep - whooping cough! I'm scared the twins might develop the laryngospasms too! Frustrating how the doctors could NOT figure this out! Now I'm just sacred - will my sons laryngospasms stop at some point?! How did you fare? Did they ultimately go away? My son isn't coughing as much now, but the laryngospasms continue :(
Thanks for sharing your story!

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Al
2/7/2019 07:46:12 am

Oh no! So sorry to hear about your boys having to deal with this. It is scary enough in adults. I'm not qualified to judge on the laryngospasms. All I know is that there is a particularly hideous stage where the coughing fits are horribly worrying and that that stage lasted for me for about two weeks. After that the cough just stayed naggingly on for ages but not with the bad attacks like before. As for why the doctors didn't pick up on it. Who knows? I think it is just a disease that they are not used to encountering. The diagnosis was so obvious once I had read up on the symptoms etc. but many doctors collectively failed to realise it. I was told I was the first case of whooping cough in the borough for 20 years - an accolade I could well have done without. I hope your boys can endure the illness knowing that it does eventually get better, even though it seems to be lasting forever.

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Susan
2/7/2019 07:51:36 am

Well I am glad you recovered—the “brief” attack recording you shared was awful—can’t imagine what your longer ones must have felt like! Thank you again for this page. Very helpful to learn about other people’s experiences with it! May we never encounter it again!

Angela Alo
24/4/2020 01:18:47 pm

My 14 years old son is going through this right now. We are in he third week of the largnospasms and this past week has been the worst with it happening every night even twice!!!! He just finally got tested today for whooping cough after going to a second er and it being a children’s hospital where they right away said whooping cough. I’m so mad that my peditrician didn’t test the first visit a month ago even after my husband bringing up what if it was whooping cough. I hope you get
This message ....id like to know how much longer it was for your son? It is the most horrifying experience to go through and watch .....I’m up all night just watching him .

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lee
23/9/2019 11:05:07 am

thanks for your detailed story.. i have it seems the exact same symptoms for last 3 weeks now. my gp fobbed me off saying "you dont look too bad to me" fkn idiot !!!
the gasping for air during a coughing fit was all too scary for as i struggled with panic attacks 15 years ago and the memories of that come creeping back. my girl friend had it 2-3 weeks before me and she got it from a woman at work whos now been coughing 12 weeks. thanks for your time and effort with your experience. it helps and confirms the problem so lessens the panic during the fits.......regards...lee

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Al
30/9/2019 03:14:32 pm

The medical profession seem to struggle to spot it as an illness as it is relatively rare these days. I am glad that at the very least it helped you work out what was happening to you. It was very scary for me when I had no idea, but once I read about the symptoms I immediately knew it was whooping cough.

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Lilly
30/9/2019 03:57:48 pm

I am now into week 5 and I think I caught it early, I’m asthmatic so as soon as I got chest pains I went straight to the doctors and got antibiotics (granted I didn’t know it was whooping cough at the time). After being in and out of A&E for over a week and the doctors not being able to work anything out I finally done a bit of googling and self diagnosed. I felt so silly as in between fits I look perfectly healthy and nothing came up on chest x-rays or standard blood tests.

Has anyone managed to find any relief treatments? I’ve now struggled for over a week to keep food down as eating usually sets off a fit. I’m so exhausted and frustrated to say the least. The only thing that seems to soothe my throat which is now sore is warm tea with some honey.
Any advice would be greatly appreciated :)

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Jess
30/9/2019 04:35:45 pm

You have my sympathies. I don't know whether it was timing, or the illness was running its course, but I took Drosera, a homeopathic remedy. I'd normally scoff at this sort of stuff, but within about 4 hours, I saw a significant reduction in coughing.For about £8, it's worth a shot...

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Al Murray
1/10/2019 09:46:34 am

I bow to others recommendations. When I had it they said there was nothing I could take to help. I tried herbal teas, honey and lemon etc. just to soothe the throat but apparently there is no medication you can take for it.

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Al Murray
1/10/2019 09:48:54 am

PS I would insist on having a Pertussis antibodies blood test. If you do have whooping cough the GP has a duty to inform Public Health England because if an epidemic broke out, well, it wouldn't be pretty.

Meddco Healthcare link
31/12/2019 06:29:21 am

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Matt link
5/1/2020 08:35:10 pm

Hi Al,
Found this very helpful thanks for sharing your experience. I have had these terrible suffocating coughs since around Christmas Day resulting in a trip to the hospital on the Friday with a severe suffocating cough very similar to your ‘mild’ recording along side vomiting. I was prescribed antibiotics and advised to take these for two weeks.
How long did your ‘choking coughs’ last currently approaching two weeks. Did they get better slowly or just stop. I can now cough occasionally without the suffocation but then out of nowhere (especially in the morning I have one. Hoping that I can see some light at the end of the tunnel as have a lot of work coming up in the next weeks.
Many thanks
Matt

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Al Murray
5/1/2020 11:12:13 pm

Hi Matt. If it is whooping cough, antibiotics won't help but the hideous coughing phase will come to an end soon. you just have to endure and know it will pass. it it is a stage of the disease, the worst one, and a bit scary. Maybe suggest they do a blood test for pertussis, it clinical name, it as the medical profession seem a bit in the dark when it comes to this particular illness

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Matt
6/1/2020 09:14:48 am

Good Morning Al, thanks for the reply
Doctor had suggested pertussis after showing him a recording of my traumatic breathless coughing fit.
Praying for a good night sleep and for the horrific fits where I can’t breathe to pass - Hoping I’m coming out the other end of it as I feel they same to be a little less severe than they were although I am still scared to eat much as that has resulted in me vomiting. If you don’t mind me asking do you remember how long you had the horrible fits for? I seem to be worst first thing in the morning with a lot of sticky mucus....
I don’t seem to cough much but would happily take a long cough over these terrifying bouts. The thought of going to bed as many people above have mentioned is terrifying!!
Many thanks
Matt

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Al Murray
6/1/2020 09:25:57 am

Hi, I can't remember the exact duration. Around two weeks I think. I would insist the doc arranges a pertussis blood test though because it's important to know 100% what you're dealing with.

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Angela Alo
24/4/2020 01:07:26 pm

The same thing is happening to my 14 year old son! We had to call paramedics twice and have been to two emergency rooms. Just yesterday was the children’s hospital ,and after I showed my video, they said pertussis right away. I couldn’t believe it . We get results tomorrow and hoping that’s it so we can just heal. It’s been a horrifying month of this and these last 4 days he has been getting these laryngospasms every night and
Twice!!!! It’s also caused this horrible acid reflux that everytime he gets these episodes he coughs up phglem and painfully burps. We have appt with ent dr as well ...not sure if I should still keep it if the test comes back positive . I wish my peditrician had tested the first time we went !!! It’s been the longest month of our lives and he is still suffering . Glad I came across your story

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Al Murray
24/4/2020 01:39:30 pm

Sorry to hear your son has it, but at least it has been diagnosed. you must have been extremely worried - I know we were when we had no idea what it is. All I can say is that once he is over the worst, stage 2, hopefully in not too many days time, it is then just a nagging cough. I hope the time goes quickly for him and he recovers well soon.

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Angela Alo
27/4/2020 10:19:27 pm

Hi again! Actually the whooping cough test came back negative .So in a way it was disappointing . He is still having episodes but not as harsh. We had some allergy bloodwork so hoping to finally getting some answers after a month of this nightmare .

Al Murray
28/4/2020 09:32:21 am

On the one hand I am glad the tests for pertussis came back negative (I assume he had the blood test as opposed to swabs from the back of the throat) but on the other it's obviously an ongoing worry as what the cause is. I hope you get to the bottom of it soon so that you can at least have some peace of mind

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Anna Blackwell
24/6/2020 01:42:56 am

Thanks for your detailed account. I suffered for a good 3 months from Feb to April 2019 with this type of cough and also the laryngospasms. I finally went to my GP in the June of 2019 because my voice still hadn’t recovered, very hoarse and weak. I told her it seemed to me I’d had whooping cough but she never offered to do a blood test. I was also suffering from acid reflux and I think my symptoms were all attributed to this. I still occasionally can’t breath (or swallow). It is scary, but I try to just relax. My voice still tires really easily. It’s just a relief to have read your story and realise why I’m having these problems. Doctors do seem reluctant to accept adults are out there suffering with Whooping Cough! Thanks again for helping me understand what I was going through. I’ve only just discovered tonight on a video what laryngospasms are! I’ve been trying to explain my symptoms but no one seemed to understand.

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Al Murray
24/6/2020 09:40:05 am

Hi Anna.Thanks for your message. It sounds like you had it to me, but unfortunately now there would be no way of knowing - or at least I don't think there is. Did you have a particular spell when it was far worse - stage 2 as they call it - when the attacks are so bad you can barely draw breath? I would be feeling fine one moment then as if I was going to choke to death the next. If so, it was definitely whooping cough. If you still have problems then I would insist they try and get to the bottom of it as i know how scary it is when you struggle to catch your breath, and, because you still have attacks, it may be something else, even though it sounds like whooping cough.

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    An experienced creative freelance copywriter and former recruitment advertising agency client services executive up to Director level, I have also worked in the advertising departments of national and regional newspapers and at a London Advertising Sales House. I set up my own copywriting business back in 2001 and work with a wide range of clients on a variety of press and online copywriting projects, the majority focused on recruitment communications. You can also find me on Twitter under my pseudonym '@RecruitmentCopy'

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